Name

What MG symptoms do you have?

What drugs/treatments did you try that didn't helped you?

What drugs/treatments do you take that helps you?

Do you think some times that perhaps you don't have MG, but something else?

Are you confidence that you have MG but they didn't yet found the correct antibodys in your body?
 

Wookiermom

Generalized muscle weakness, diplopia, impaired breathing.
 

Imuran, lead to an allergic response.

Mestinon, CellCept and IVIG (before my insurance denied any more infusions).

No

Yes

sheri

double vision mostly, some muscle weakness, FATIGUE, all of the above worse during my period and when I drink alcoholic bevs
 

mestinon made me have LOTS of muscle weakness

i don't take anything anymore for right now have prism glasses for my double vision

i don't know what to think anymore

i don't know what to think anymore

Generalised weakness - arms, legs, droopy eyelids, speech and swallowing difficulties, fatigue,
 

imuran, prograff, had side effects that were dangerous, IVIG didnt show much improvement.

mestinon, imuran, plasma exchange, ivig - but still 40 percent symptomatic

Perhaps - if its something that hasnt been 'discovered ' yet

Perhaps - if its something that hasnt been 'discovered ' yet

DV, blurred vision, generalized weakness, droopy right eyelid, slurring words, swallowing,

Mestinon, thymectomy

Cellcept, mestinon, Plasma pheresis

Yes still question neurologist

I know the neurologist and my cardiologist/neurologist and family doctors all agree that I have mg.  But I want some proof, I accept it, do the meds, but still have doubts.
 

cally

Everything, but mostly ocular and visual.

I think that would be the correct assessment for me.

Mestinon, thymectomy

I used Cellcept for 5 years (off since Jan) and currently just use IVIG, although I'm not sure it helps that much.
 

I think I have MG, but it is triggered by hormonal fluctuations and abnormalities.