|
Name |
What MG symptoms do you haveFriday, January 31, 2003? |
What drugs/treatments did you try that didn't helped you? |
What drugs/treatments do you take that helps you? |
Do you think some times that perhaps you don't have MG, but something else? |
Are you confidence that you have MG but they didn't yet
found the correct antibodys in your body? |
|
Sherron |
Ptosis ( now in both),blurred vision with minor diplopia at times, dysphagia, fatigue with chewing, hoarseness with talking, weakness in neck, arms , legs , sensitivity to heat (which causes weakness, shortness of breath & breathing difficulties), choking/coughing on sputum (duh) thin liquids and sometimes food, |
Mestinon doesn't really help the weakness much |
Mestinon does help the ptosis quite a bit |
Sometimes, but my symptoms seem to match pretty close to
other peoples' on this list and BrainTalk. And if I have to have some horrid
disease, all the other things the doctors have mentioned as a differential
diagnosis have been even worse. One doctor had me do a genetic test for OPMD
and when I looked that one up, I was thankful that was negative (although my
symptoms didn't really match, so I think that was a waste of my money). |
Yes, pretty much so. Seems like most everything else just doesn't "fit". |
|
lovecchio |
Generalized MG weakness |
Everything has helped so far (thymectomy, prednisone,
plasmapheresis, and Mestinon) |
Presently am taking only Mestinon - have been off prednisone for five years and holding |
No |
Yes -- I'm seronegative to MG antibody test and MUSK antibody test |
|
Andrea |
Ocular & Generalized w/ Respiratory involvement |
N/A |
mestinon & imuran prednisone for 7 out of 14 years of MG,
thymectomy?? |
No |
Yes |
Page designed by Terry Riley
http://myasthenia.puhs.org/
Wednesday, August 09, 2006