Survey - Page 8 - Questions 6 - 10

Name

What MG symptoms do you haveFriday, January 31, 2003?

What drugs/treatments did you try that didn't helped you?

What drugs/treatments do you take that helps you?

Do you think some times that perhaps you don't have MG, but something else?

Are you confidence that you have MG but they didn't yet found the correct antibodys in your body?
 

Sherron

Ptosis ( now in both),blurred vision with minor diplopia at times, dysphagia, fatigue with chewing, hoarseness with talking, weakness in neck, arms , legs , sensitivity to heat (which causes weakness, shortness of breath & breathing difficulties), choking/coughing on sputum (duh) thin liquids and sometimes food,

Mestinon doesn't really help the weakness much

Mestinon does help the ptosis quite a bit

Sometimes, but my symptoms seem to match pretty close to other peoples' on this list and BrainTalk. And if I have to have some horrid disease, all the other things the doctors have mentioned as a differential diagnosis have been even worse. One doctor had me do a genetic test for OPMD and when I looked that one up, I was thankful that was negative (although my symptoms didn't really match, so I think that was a waste of my money).
 

Yes, pretty much so.  Seems like most everything else just doesn't "fit".

lovecchio

Generalized MG weakness

Everything has helped so far (thymectomy, prednisone, plasmapheresis, and Mestinon)
 

Presently am taking only Mestinon - have been off prednisone for five years and holding

No

Yes -- I'm seronegative to MG antibody  test and MUSK antibody test

Andrea

Ocular & Generalized w/ Respiratory involvement

N/A

mestinon & imuran prednisone for 7 out of 14 years of MG, thymectomy??
 

No

Yes


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Wednesday, August 09, 2006