|
Name |
What MG symptoms do you have? |
What drugs/treatments did you try that didn't helped you? |
What drugs/treatments do you take that helps you? |
Do you think some times that perhaps you don't have MG, but something else? |
Are you confidence that you have MG but they didn't yet
found the correct antibodys in your body? |
|
Nadia |
Droopy eyelids,blurred vision, difficulty chewing |
None. I had plasmapheresis, IVIG when in a crisis. |
Prednisolone 8 mg every other day . Mestinon |
No |
I have a very low dosage of antibodies |
|
Wharrison |
Had eye problems, diplopia, ptosis, circumduction
(swinging gait), upper extremity weakness, and respiratory issues. |
Mestinon, neostigmine. |
Thymectomy. |
Yes, sometimes. |
Yes |
|
Sara W |
Generalized-neck, arms, legs, breathing,swallowing... drooping of my eyelid double vision. have trouble talking partly because I slur and can't seem to get my mouth to work |
Cyclosporine, IVIG, and the few times I've taken
plasmapheresis I haven't had dramatic improvement but over time it seems to
help. . I had to stop Imuran because of elevated liver enzymes. After the
one treatment of IVIG I was told I couldn't take it again because I had an
IgA deficiency-I I had a thymectomy in 1992 and I do not think it helped at
all. |
Mestinon, prednisone, cellcept, oxygen as needed, ephedrine sulfate |
No. Sometimes I think I may have something in addition to MG but I never doubt that I have MG. |
Yes. My primary care physician laughs and says he thinks I have a cousin to MG. |
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Wednesday, August 09, 2006