Survey - Page 6 - Questions 6 - 10

Name

What MG symptoms do you have?

What drugs/treatments did you try that didn't helped you?

What drugs/treatments do you take that helps you?

Do you think some times that perhaps you don't have MG, but something else?

Are you confidence that you have MG but they didn't yet found the correct antibodys in your body?
 

Sara

Double vision, drooping eyelids, generalized weakness, difficulty swallowing, difficulty breathing,
 

None; remission possibly due to pregnancy; recurrance possibly due to menepause

Mestinon, Mestinon timespan, IVIG;

Sometimes but rarely

I'm sure it is MG

Carol

droopy eyelids, weakness in arms and legs some double vision

imuran- was allergic

mestinon, cellcept, ivig.  was on prednisone and plasmapheresis
 

No

Yes

Leslie

double vision, droppy eyelid and some weakness in my arms and legs.

IVIG

Mestinon 90mg every 2 hours  Pred. and I waiting for the cellcept to work.(Its been 4 months)
 

No

Yes

Mary D.

Breathing problems,Blurred vision, mild swollowing difficulty. voice fading, leg and arm weakness. 

Mestinon I take CellCept but I don't think it helps. Have been on for 2 1/2 years and I do not see any change. Neuro thinks it's essential.
 

Monthly IVIG

No. My family sometimes thinks so.

Yes Comment: I am not sure that I am Sero-Neg to MuSk.

Allen

double vision, breathing weakness, swallowing and weakness in my arms and legs (but in remission)
 

Plasmapheresis and Mestinon Timespan (almost killed me). 

Thymectomy was the best thing and helped the most reduced my medicine and brought a remission.

No

After many tests they did find a very low level of antibodies.


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Wednesday, August 09, 2006