|
Name |
What MG symptoms do you have? |
What drugs/treatments did you try that didn't helped you? |
What drugs/treatments do you take that helps you? |
Do you think some times that perhaps you don't have MG, but something else? |
Are you confidence that you have MG but they didn't yet
found the correct antibodys in your body? |
|
Sara |
Double vision, drooping eyelids, generalized weakness,
difficulty swallowing, difficulty breathing, |
None; remission possibly due to pregnancy; recurrance possibly due to menepause |
Mestinon, Mestinon timespan, IVIG; |
Sometimes but rarely |
I'm sure it is MG |
|
Carol |
droopy eyelids, weakness in arms and legs some double vision |
imuran- was allergic |
mestinon, cellcept, ivig. was on prednisone and
plasmapheresis |
No |
Yes |
|
Leslie |
double vision, droppy eyelid and some weakness in my arms and legs. |
IVIG |
Mestinon 90mg every 2 hours Pred. and I waiting for
the cellcept to work.(Its been 4 months) |
No |
Yes |
|
Mary D. |
Breathing problems,Blurred vision, mild swollowing difficulty. voice fading, leg and arm weakness. |
Mestinon I take CellCept but I don't think it helps. Have
been on for 2 1/2 years and I do not see any change. Neuro thinks it's
essential. |
Monthly IVIG |
No. My family sometimes thinks so. |
Yes Comment: I am not sure that I am Sero-Neg to MuSk. |
|
Allen |
double vision, breathing weakness, swallowing and weakness
in my arms and legs (but in remission) |
Plasmapheresis and Mestinon Timespan (almost killed me). |
Thymectomy was the best thing and helped the most reduced my medicine and brought a remission. |
No |
After many tests they did find a very low level of antibodies. |
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Wednesday, August 09, 2006