Name

What MG symptoms do you have?

What drugs/treatments did you try that didn't helped you?

What drugs/treatments do you take that helps you?

Do you think some times that perhaps you don't have MG, but something else?

Are you confidence that you have MG but they didn't yet found the correct antibodys in your body?
 

Mary jane

VERY GENERALIZED SYMPTOMS, DOUBLE VISION, BULBAR SYMTOMS, LEG AND ARM WEAKNESS, DIFFICULTY BREATHING

IMURAN

CELLCEPT, CYCLOSPORIN HELPED A LITTLE BUT NOT VERY MUCH MESTINON 120MG EVERY 4 HOURS PREDNISONE 30/10 EVERY OTHER DAY NOW   IVIG PLASMAPHERESIS   PROGRAF  I HAVE JUST STARTED THIS ONE WHEN CELLCEPT WAS DISCONTINUED.
 

I DOES CROSS MY MIND BUT REALSTICALL NO

Yes

Anne

overall weakness that worsens with fatigue, overuse, pollution, respiratory or other infections; falling; occasional choking on foods or liquids, occasional difficulty chewing; slurred speech that worsens between doses of Mestinon; respiratory problems (oxygen desaturation, shallow respiratory pattern, low peak expiratory flow rate, shortness of breath)>

pulmonary rehabilitation, medroxyprogesterone (when the problem was thought to be primary alveolar hypoventilation), some antibiotics, sleep study, open-lung biopsy, hospital stay at National Jewish Hospital

Mestinon, Robinul, Mestinon Timespan,  corticosteroids, adequate rest including naps, biPAP machine as needed, oxygen occasionally, antibiotics for respiratory infections, decreased exposure to pollution

unsure

yes, most of the time Comment: You mentioned that some neurologists may be confused about MG. Many pulmonary physicians are also confused about the pathophysiology and treatment of respiratory problems in people with MG. To pulmonary doctors, a respiratory crisis is often assumed to be an asthma attack. When the condition does not have the usual features of asthma, some pulmonary doctors question whether any condition of respiratory difficulty exists.
 

Mary

first ocular, then remission, then generalized with ocular (double vision, drooping eyelids), trouble chewing, swallowing, slurred speech, general weakness/tiredness, good day, bad days, mixed days
 

IVIG, got worse after

Mestinon helps some, took Cellcept, went into remission, came out generalized so Dr is now adding Imuran, then will gradually delete Cellcept as a trial

No

Yes Comment: I am not sure that I am Sero-Neg to MuSk.