|
Name |
What MG symptoms do you have ? |
What drugs/treatments did you try that didn't helped you ? |
What drugs/treatments do you take that helps you ? |
Do you think some times that perhaps you don't have MG, but something else ? |
Are you confidence that you have MG but they didn't yet
found the correct antibodys in your body ? |
|
Rejane |
Fatigue, heavy weight on whatever part of body the mg is
affecting that particular day. I have generalized MG. It can be from holding
your head up to talking to chewing to walking. |
Predisone, mestinon, Predisone while it helped tremendously, caused cushings disease. MEstinon helped at the beginning but not later. |
ivigs, immuran |
I do not |
that is the million dollar question only research and time will tell. |
|
lou |
General weakness, using arms, hands, walking,
holding up head, tongue,swollowing, breathing, soft pallate,
droopy eye lids, double vision, blurry vision |
Imuran, allergic to it |
Mestinon, Cellcept, IVIG |
NO I know I have MG based on my symptons and how Mestinon helps me but I think I have other medical problems too |
Yes |
|
Louise |
Rite now I am in remission. When the disease was active I
had generalized weakness in all muscle groups. |
mestinon |
prednisone, cellcept, cyclosporine |
Yes |
Yes |
|
Renee |
I am in a drug-induced remission. I am primarily
ocular. I had prolems chewing shortly after my initial diagnosis but
have not had problems since then. |
mestinon -- didn't do a thing. |
prednisone, cellcept, cyclosporine |
No |
Yes |
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Wednesday, August 09, 2006