Name

How old are you?

Do you have a confirmed diagnosis of MG?

How did you get your diagnoses?

How long do you think you had MG before you got your diagnoses?

Did you hear from some doctors that you don't have MG?

Sara W

57

Yes

Tensilon, EMG & SFEMG
 

6 months

Yes

Sherron

58

No, even with 2 positive SFEMG's

2 years

Oh yeah, some of them have been real jerks about it.
 

lovecchio

51

Never definitely confirmed

Emergency room visit due to MG crisis in 1996

had symptoms four days before emergency room visit 
 

No

Andrea

41

Yes

SFEMG

16 Mos

Yes
 

wookieemom

49

Yes

Tensilon, hyperplastic thymus, and clinical judgement.
 

16 years

Yes

sheri

29

No

have had LOTS of blood tests and a fiber EMG on my forehead
 

symptoms started in April 2005

Yes

christina

41

Yes

Tensilon test

Prob since age 7

Frequently
 

anonymous

45

Yes

Tensilon test

had it way back to 1987 while pregnant with daughter
 

Yes

Cally

43

Yes, since 1999

Clinical observation & EMG

1-1.5 years

The first 2 neuros were not sure.
 

Jeanne

62

Yes

EMG, RNS, SFEMG etc.
 

30 years

One