Name

What MG symptoms do you have?

What drugs/treatments did you try that didn't helped you?

What drugs/treatments do you take that helps you?

Do you think some times that perhaps you don't have MG, but something else?

Are you confidence that you have MG but they didn't yet found the correct antibodys in your body?
 

Nancy

DV, very poor balance and coordination, choking/strangling, weakness, extreme fatigue, muscle pain, heavy sweats upon least exertion, shortness of breath
 

have only been on Mesty, IVIG and Cortef (steroid for Addison's which also helps MG)

IVIG recenlty has made a huge difference

No

Yes

aubrey

legs, arms upper body weakness
 

predisone

mestinon, 3,4-DAP

No

No

Paulette

I Started out with genralized weakness in my back and legs. Then I couldn't hold my head up. After 3 months a developed double vision, one image on top of another , not like crossed eyes.
 

I've only been on meds for 3 weeks. The 60mg X 3 of Mestinon seemed to be great at first, lasting 6-7 hours. Now barely 3 hours before symptoms return.

I am currently taking 20mg of Prednisone and 60mg X 5 of Mestinon. Tonight I took my first tab of 180mg Mestinon to get me through the night. So far,so good!

No! I figured out what I had by looking up my symptoms on the internet. $2,000 + of tests later, the doctor agreed.

Yes

Cheryl

generalized weakness, swallowing, breathing problems, dv

Prednisone, Imuran

Mestinon and IVIG currently, CellCept put me into remission several years ago but not currently on it.

NO, I always know I have MG, but I also have other dieseases

Yes

kim

I had respiratory and weakness in my extremities for about 2 years prior to my dx. Initially I was treated for asthma due to a positive Methacholine Challenge.

I was put on nebulizers, multiple inhalers and oral medications without noticeable improvement. I have had moderate to severe fibromyalgia for 6 years.
 

* See also addition 1