Name

How old are you?

Do you have a confirmed diagnosis of MG?

How did you get your diagnoses?

How long do you think you had MG before you got your diagnoses?

Did you hear from some doctors that you don't have MG?

Mich

37

"empirical" diagnosis of MG

immediate and positive response to Mestanon, combined with family history of MG but usually only occular
 

I have always had rapid fatigue, since I was a child

throughout my childhood and early adulthood, I was repeatedly informed that I was being lazy, a hypochondriac, etc.

ludmg02

50

Yes & No ?

SFemg

Years

Yes
 

Kathy 4

46

Yes

tensilon test/ enlarged thymus/ positive EMG/ clinical by Neuro / clinical by MG eye specialist
 

3 years

Yes

ludstevens

50

Yes

SFEMG

Years

Yes
 

Debra

53

Yes

EMG

8 months

No
 

Rejane

53

Yes

Tensilon test, Clinical medical history, muscle biopsy, Nerve conduction study, MRI's of the brain,a lot of blood work to eleminate other diagnosis
 

I got diagnosed the first visit with a neuro

No

lou

54

Yes

Tenslion test, EMG, SFEMG  all positive for MG
 

5 years

Yes

Louise

60

Yes, 1989 at age 43

droopy eyelids and weak leg muscles

Pictures taken when I was 4 show my wandering left eye and lid drop.
 

Only one