|
Name |
What MG symptoms do you have? |
What drugs/treatments did you try that didn't helped you? |
What drugs/treatments do you take that helps you? |
>Do you think some times that perhaps you don't have MG, but something else? |
>Are you confidence that you have MG but they didn't yet
found the correct antibodys in your body? |
|
Steven |
Generalized – use of a power wheel chair; very poor prognosis. |
Everything so far has helped to some degree but has not made me mobile. |
Mestinon TS, Prednisone, Imuran, Cellcept, Plasma
Exchange, and IViG. The Imuran works but not enough. Just started Cellcept
|
I was originally DXed with ALS – I am very confident of MG. |
Yes |
|
Tracy |
double vision. intermintant muscle failure in extremities (forearms and calves mostly), trouble swallowing, droopy eye lid/brow. |
Everything has helped so far. |
Mestinon (120 mg every 3 hours while awake, nothing while
sleeping) Prednisone (no longer, though YEAH!!) Plasmapheresis - was amazing
- the best treatment so far ever!!! and thymectomy (I don't really know if this has helped or not) |
I suggested this to my neuro and he laughed at me. At first I had a hard time believing it, so I was in denial - so much so I didn't take my mestinon regularly, and I suffered. |
Yes. I know now I do have MG. |
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http://myasthenia.puhs.org/
Wednesday, August 09, 2006