Survey - Page 1 - Questions 6 - 10

Name

What MG symptoms do you have?

What drugs/treatments did you try that didn't helped you?

What drugs/treatments do you take that helps you?

>Do you think some times that perhaps you don't have MG, but something else?

>Are you confidence that you have MG but they didn't yet found the correct antibodys in your body?
 

Steven

Generalized – use of a power wheel chair; very poor prognosis.

Everything so far has helped to some degree but has not made me mobile.

Mestinon TS, Prednisone, Imuran, Cellcept, Plasma Exchange, and IViG. The Imuran works but not enough. Just started Cellcept
 

I was originally DXed with ALS – I am very confident of MG.

Yes

Tracy

double vision. intermintant muscle failure in extremities (forearms and calves mostly), trouble swallowing, droopy eye lid/brow.

Everything has helped so far.

Mestinon (120 mg every 3 hours while awake, nothing while sleeping) Prednisone (no longer, though YEAH!!) Plasmapheresis - was amazing - the best treatment so far ever!!! and thymectomy (I don't really know if this has helped or not)
 

I suggested this to my neuro and he laughed at me. At first I had a hard time believing it, so I was in denial - so much so I didn't take my mestinon regularly, and I suffered.

Yes. I know now I do have MG.


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Wednesday, August 09, 2006