Name

How old are you?

Do you have a confirmed diagnosis of MG?

How did you get your diagnoses?

How long do you think you had MG before you got your diagnoses?
 

Did you hear from some doctors that you don't have MG?

Steven

49

Yes

MG crisis – Tensilon Test
 

9 months

Yes

Tracy

41

Yes

Tensilon test

4.5 months from the time I told a doctor I had double vision to tensilon test diagnosis
 

Nope (I have been very lucky)

Linda

46

Yes

I was 1st diagnosed by an opthamologist and then neuro

opthamologist when the dv returned after it behaving for about 20 years with prisms in my glasses.

About 21or 22 years.

yes my family doctor said don't worry you don't have that when

the opthamolgist said he thought I might have it. He said he didn't

want me to worry about it until we were sure what my problem is.
 

jwinterwood

30

Yes

EMG and Single Fiber EMG

I had symptoms at 7 to 13 years old. (docs thought it was a virus)Symptoms reappeared just before 28th birthday.
 

Yes

Nancy

65

Yes

4 neuro's, 2 neuro ops, EMG and needle EMG, positive response to Mestinon
 

about 8 years, began with DV

Yes

aubrey

59

Yes

tests in 1963 snd 1971
 

16 years

No

Paulette

52

Yes

Tensilon test.
 

5 months

Yes

Cheryl

53 sson to be 54

Yes 1989

Single Fibre EMG
 

3 years

Yes

kim

50

Yes

Tensilon Test. I had a muscle biopsy and much lab work prior to that
 

2 years