Survey on - "Sero-Neg" to AChR & MuSK


Hi Y'All,

To help a good friend of mine, I like to do a small survey on a small group ( I hope it is small) of MG patients. The patients I'm referring are those that are Sero-Neg to AChR & Sero-Neg to MuSK.

Questions:

1. How old are you ?

2. Do you have a confirm diagnose of MG ?

3. How did you got your diagnose ?

4. How long do you think you had MG before you got your diagnose ?

5. Did you hear from some doctors that you don't have MG ?

6. What MG symptoms do you have ?

7. What drugs/treatments did you try that didn't helped you ?

8. What drugs/treatments do you take that helps you ?

9. Do you think some times that perhaps you don't have MG, but something else ?

10. Are you confidence that you have MG but they didn't yet found the correct antibodys in your body ?

"Sero-Neg to All" group of patients, I hope by your answers I will understand more about the part of MG patients that most of the neurologists are confuse and send part of them to see psychiatrist ("It's all in your head").

Any help would be greatly appreciated.

Thanks.

Moshe Pick
OMG 1996
ISRAEL

July 2006
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Friday, January 31, 2003