"Cellcept" Survey 2002.
Page 8

Question:

What side effects do you have due to the Cellcept ?

Name

Answers

Aneta

GI

Bob

Minor diarrhea at times but no others.

Bill

None that I have seen.

Jackson

acne, night sweats, anemia, heart palpitations.

Brenda

sleepy,could be mg though.

Buddy

Diarrea, some upset stomach.

Carmen

Some stomach upset, but I am not sure if it is Cellcept or the Mestinon.

Cathy

 Weight gain !  more than with the prednisone by far. The longer I'm on it I have noticed I have been experiencing some dizziness shortly after taking. Also it is beginning to bother my stomach

Christine

None so far.

Dean

Very few, but periodic heart pulps.

Debbie

I don't know if the side effects are from Cellcept or prednisone, but I have tremors and heart palpitations - which I'm getting a heart monitor for.

Dossie

At first had extreme GI problems . Neuro put me on several meds. and we finally found that Aciphex controlled it completely. It's great to be without those problems!

hack

None.

Woody

None whatsoever that I'm aware of.

Jeff

became slightly anemic.

Jennifer

Started cellcept 8 weeks ago.  Loss of appetite/weight loss (that's okay by me because I had put 15 lbs from the prednisone - now I'm back to my regular weight), racing heartbeat.

Had a slight case of pneumonia last month and this time of year is always bad for me for upper respiratory problems. I have a really good cough that's driving my whole body nuts right now. With the cellcept, who knows how long it will take me to get better.

Joanne

Stomach - Constipation. sometimes wake up with stomach ache.

John

NONE!!!!

Kerri

At the beginning I had pretty bad gastrointestinal upset. Cramping, burning, etc. I called my neuro, he told me to take it with food and have had no problems since.

Kevin

i really don't know what is a side effect, symptom adverse reaction any more because there are so many auto immunes going on in my body...too hard to sort it all out

Linda W.

I haven't noticed any side effects yet.

Louise

When we tried to up the dose to 3grams I got a terrible rash ALL over my body.

Marianne

When I started cellcept I had bad headaches but they went away in about 3 weeks. I have diarrhea but I think its a combination of cellcept and mestinon.

Michael A.

1) upset stomach, 2) at 3g /day I had very bad headaches - dropped back to 2g a day - still have headaches but not anything like the ones I had at 3g

Michael R.

None so far.

Raymond

None.

Rebecca

I get nauseated and sometimes have to lie down until it goes away. Other than that, I haven't had the liver toxicity that I had with Imuran and cyclosporin.

Renee

I am also taking Cyclosporine w/ the Cellcept. Side effects that I have had are hypertension (high blood pressure) and hirsutism (extra hair) but I believe these are both Cyclosporine related. Other weird side effect is that when my extremities get cold, as they get warmer they get really hot feeling, at least internally. The skin is not abnormally hot.

Robert

None.

Blutomato

NONE-maybe insomnia-hard to tell which drug is causing it.

Jim

None.

Jan

Insomnia, but changed dosing time and went away.

Connie

When I first started taking it I had a headache and severe fatigue/weakness for about 4 days. This happened again each time I increased the dose over the next 4 weeks (I started with 500mg daily and increased each week by 500mg until I was at my current dose of 2000mg daily). After a few days on each new dose the side effects went away. I will occasionally have a headache which I attribute to the CellCept, but not often.

Diane G.

Gastro intestinal upsets that vary and come and go. A really bad internal thermostat. I'm usually dying from hot flash and sweats alternating with freezing spells. I'm not sure if this is due to the M.G. or to the medications. I absolutely cannot tolerate Heat or Humidity.

Diane M.

chronic Insomnia, on Imuran, all I wanted to do was sleep. Lasting cold & cough, more minor infections.


……….Answers to Question No. 8



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