"Cellcept" Survey 2002.
Page 5

Question:

What medications have you dropped while on Cellcept ?

Name

Answers

Aneta

IMURAN, CYCLOSPORINE, PREDNISONE AND PLASMA PHERESIS

Bob

Imuran and tapering Prednisone.

Bill

None.

Jackson

none - still taking mestinon and ephedrine sulfate with occasional plasmapheresis.

Brenda

None.

Buddy

Mestinon,Imuron.

Carmen

None.

Cathy

Imuran was dropped before Cellcept was started.

Christine

None.

Dean

None.

Debbie

Mestinon, Imuran.

Dossie

Mestinon, IVIG.

hack

Down from 120mgs Prednisone EOD to 15mgs EOD and from 120 mgs of Mestinon every 4 hours to 60mgs every 8 hours! This is over a year and a half time period.

Woody

I was able to stop imuran within 6 weeks and reduce, then stop taking the mestinon timespan and also stop taking ephedrine sulfate.

Jeff

Blood pressure meds.

Jennifer

none.

Joanne

Imuran and lowering doseage of Prednisone - currently 8 mg e.o.d.

John

Mestinon.

Shirley

I have dropped imuran, take half the portion of mestinon and weaned myself off of prednisone.

Kerri

I am down to only 10mg EOD of Prednisone, and am not taking Mestinon at all.

Kevin

imuran.

Linda C.

Linda W.

I haven't dropped any meds yet since started cellcept, but the plan is to wean off prednisone.

Louise

imuran, mestinon, cytoxan, cyclosporine.

Marianne

I have not dropped anything yet. I have only been on cellcept for 5 weeks. The plan is to taper ivig slowly. He would also like to taper prednisone and decrease mestinon. All of this would start in 6 months and occur over 1 year.

Michael A.

  None.

Michael R.

  None.

Raymond

Tapering off of Prednisone. Was on 50 mg/day due to major bulbar symptoms in June & July 2002. Difficulty swallowing, chewing, heavy mucous, slurred speech, nasal voice. Prednisone is now at 50/15 EOD.  Mestinon was at 600mg/day, now is at 240mg/day.

Rebecca

I have been able to slowly cut back on prednisone without a worsening of symptoms.

Renee

Dropped my dosage of prednisone from 60 mg/day to currently at 30/20 mg on alternate days after 4 mos of Cellcept.

Robert

Just the cyclosporine.

Blutomato

Prednisone, Immuran, was taking 15 tabs of Mestinon per day now only take a very little Mestinon several times a week.

Jim

none (prednisone, immuran dropped before using Cellcept).

Jan

Imuran, prednisone, IVIG and lowered cyclosporine 200mg.

Connie

Imuran.

Diane G.

I have dropped Mestinon off and on. I am not convinced that it is doing any good. My Neuro said I could drop it if I wanted. I take one 60 mg. Dose once or twice a day and will probably drop it entirely as the Cellcept takes

over.

Diane M.

Imuran.


……….Answers to Question No. 5



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