Question2

"Cellcept" Survey 2002.
Page 3

Question:	Is it was your Neuro's decision or yours ?
Name	^Answers
^Aneta	^{YES, the neuro did.}
^Bob	^{Cellcept had fewer advertised side effects than other medications. My choice to not go more aggressive.}
^Bill	^Neuros
^Jackson	^{my neuro told me it was a 'new' wonder drug (i had been reading about it on this list for several years.)}
^Brenda	^both
^Buddy	^Neuro's
^Carmen	^{Neuro's decision. He felt Cellcept had fewer side effects and was worth a try. he had read many articles on the use of Cellcept and really felt it was my best option. If the Cellcept didn't work, then he would go the Prednisone route.}
^Cathy	^Neuro's
^Christine	^Both.
^Dean	^{I asked if I could try it, he had'nt heard of it , and called mayo, before putting me on it.}
^Debbie	^Both.
^Dossie	^{Threatened him with death to put me on it and he finally gave in.}
^hack	^{Both, we were getting desperate and felt I was too young to try some of the other meds with proven severe side effects. (like immuran and cyclosporan).}
^Woody	^{It was a joint decision.}
^Jeff	^Both.
^Jennifer	^Both.
^Joanne	^Both.
^John	^Neuro's
^Shirley	^{Both of us were involved in the decision.}
^Kerri	^{My neuro suggested it, and I agreed. I had never heard of it before he told me about it.}
^Kevin	^{Both..but neuro suggested it.}
^{Linda C.}	^Both
^{Linda W.}	^{I think it was both. He'd mentioned it in passing, but I pushed for it. I'm the first MG patient in the area of about 800,000 people. There's about 30 MGer's and none yet on Cellcept but me.}
^Louise	^mine
^Marianne	^{It was a proposed by him but a mutual decision to start the med.}
^{Michael A.}	^{My choice.}
^{Michael R.}	^Mine
^Raymond	^{Neuro's, but I had no objections as he is at Johns Hopkins and is himself considered one of worlds leading experts on MG.}
^Rebecca	^{Both. I had suggested it to my neuro about a year before we gave it try. Because I had read promising literature about its use for MG.}
^Renee	^{Neuro in conjunction w/ me.}
^Robert	^Neuro
^Blutomato	^{I am a nurse practitioner and I urged him to let me try it. I was the first patient he put on it-now does it regularly.}
^Jim	^{I had the final decision.}
^Jan	^{Neuro gave me the option.}
^Connie	^{Neuro suggested it and since I have 100% confidence in him I readily agreed.}
^{Diane G.}	^Mine.
^{Diane M.}	^{I presented it to him, as Imuran was not helping with lung/breathing problems. Then we both agreed to try Cellcept.}

……….Answers to Question No. 3

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