"IVIG" Survey 2003.
Question 5

Question:

What adverse reaction did you have with the treatment, if any ?

Name

Answers

Moshe

None.

Jack

nothing else.  The last couple of time I have not received instant reversal of my symptoms.  It now take 2 or 3 days to feel it.

Dennis

Slight headache

Marianne

Headaches, upper back aches (rate related),  and generalized fatigue feeling.

Carol

I had the normal side effects, achiness, headache and tiredness.  Have had aseptic meningitis 7 times.

Bette

Experienced nausea each treatment

Myrna

Just a slight head ache.

Dusty

THIS TIME HORRID HEADACHES, SEEM TO STAY IN CONTROL IF RUN NO FASTER THEN 210.BUT THEY KEEP TRYING TO CRANK IT UP FASTER. GRRRRR. NOW I KNO WMY NUMBER!!! I ALSO HAD NAUSIA THIS TIME TOO DURING THE PRIOR 2 DAYS FI IVIGS I HAD HEADACH AND BREATHING B PROBLEMS.

Brian

None at all.

Ira

None!

Woody

Following the above described procedures, I have had no adverse effects from any of the infusions. (Others getting IVIG infusions at the same time suffered headaches, fever, nausea and general malaise; They were getting Gammagard 5% at much faster rates. This past week, the other patient getting IVIG, never returned because she had headaches, fever and nausea from the first infusion.)

Jennifer

I already get migraines so the IVIGs bring them on even more so.  Day before/day of treatment, I take Amerge 2.5 mgs and I'm pre-treated with 50 mg Benadryl.  More often than not I get the flu-like symptoms though I've never had full-blown aseptic meningitis.  Also, I found that I can't take a drip faster than 100 ml or I get a MASSIVE migraine and/or my blood pressure drops.

Lou

Sometimes I get a headache. Also they have difficulty finding and keeping good veins

Sue

Sometimes I get a headache.

Tina

headache and kind of crappy feeling after the 3rd day

Christine

aseptic meningitis

Connie

Usually feel kind of tired and weak the day of and sometimes the day after...nothing too bad.  Usually have a mild headache the day of.

Cathy

None.

  Question 6


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