IVIG Question 4

"IVIG" Survey 2003.
Question 4

Question:

If you did only the “Boost Series” (Didn’t continue with Maintenance). How long it was before the symptoms returned ?

Name
^Answers

^Jack ^{I had DV when I left the hospital.}

^Dennis ^{Origional symptoms didn't deteriate but developed
breathing and speaking problems after about 7 months.}

^Bette ^{Had 5 day series treatment in July 1996 and September 2001}

^Myrna ^{Had to wait four weeks to feel a little better, then
after the first maintenance, it took another week, , but the good effects
were gone before the next one was due}

^Dusty ^{NEVERER HAVE BEEN UP AND RUNNING YET AS THEY SAY I SHOULD
BE KINDA A SLOW START. I HAVE ALREADY ASKED NEW DOC. FOR ANOTHER IVIG IN
THREE MONTHS TO GIVE THE CELLECPT TIME TO KICK IN SINCE I FEEL THE GOOD
DIFFERENCE IN THIS LAST IVIG SO FAST. WANNA KEEP UP AND NOT COME DOWN .
LETS TRY TO MAINTAIN THIS TIME. I THINK THE AGREE.}

^Brian ^{Once again if I don't catch anything twice a year is
enough (six months)}

^Woody ^{So far, I've received only complete series of 5 IVIGs,
which have lasted about 3 months each; from now on, I will get
"booster" every 3 months and see how that works. We're hoping
that the 3 grams cellcept and 250 mg. cyclosporine i take each day will
fully "kick in" and make these "boosters" unnecessary
in the near future.}

^Lou
My first treatment was in September 2002; the next was November 2002. I have been trying to ^schedule^{another for the last 3 weeks and will start the 10th of February.}

^Tina ^{the shortness of breath, and double vision did not return,
but just in general fatigue in a couple months}

Question 5

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Sunday, March 05, 2006

Question:	If you did only the “Boost Series” (Didn’t continue with Maintenance). How long it was before the symptoms returned ?
Name	^Answers
^Jack	^{I had DV when I left the hospital.}
^Dennis	^{Origional symptoms didn't deteriate but developed breathing and speaking problems after about 7 months.}
^Bette	^{Had 5 day series treatment in July 1996 and September 2001}
^Myrna	^{Had to wait four weeks to feel a little better, then after the first maintenance, it took another week, , but the good effects were gone before the next one was due}
^Dusty	^{NEVERER HAVE BEEN UP AND RUNNING YET AS THEY SAY I SHOULD BE KINDA A SLOW START. I HAVE ALREADY ASKED NEW DOC. FOR ANOTHER IVIG IN THREE MONTHS TO GIVE THE CELLECPT TIME TO KICK IN SINCE I FEEL THE GOOD DIFFERENCE IN THIS LAST IVIG SO FAST. WANNA KEEP UP AND NOT COME DOWN . LETS TRY TO MAINTAIN THIS TIME. I THINK THE AGREE.}
^Brian	^{Once again if I don't catch anything twice a year is enough (six months)}
^Woody	^{So far, I've received only complete series of 5 IVIGs, which have lasted about 3 months each; from now on, I will get "booster" every 3 months and see how that works. We're hoping that the 3 grams cellcept and 250 mg. cyclosporine i take each day will fully "kick in" and make these "boosters" unnecessary in the near future.}
^Lou	My first treatment was in September 2002; the next was November 2002. I have been trying to ^schedule^{another for the last 3 weeks and will start the 10th of February.}
^Tina	^{the shortness of breath, and double vision did not return, but just in general fatigue in a couple months}