"Cellcept" Survey 2002
Summary of the Survey January 2003

The "Cellcept Survey" was conducted through Nov/Dec 2002. More then 40 members from various Mailing Lists gave theirs answers and I'm sure more will do so in the future.

Till now 70 members got the Summary report upon request.

Here is the summary for January 2003:

---

1) For the question: "Why did you choose Cellcept ?" the answers were as follows:

Neuro. choice - - - - - - 13

Less Side-effects - - - - 5

No results from other med's - - - - 13

Trying to get off Prednison - - - - - - 4

After hearing about it on the List - - 4

---

2) For the question: "Is it was your Neuro's decision or yours" ? the answers were as follows:

Mine - - - - - - 10

Neuro's - - - - 13

Both - - - - - - 12

---

3) For the question: "What other medications were you given before trying Cellcept ?" the answers were as follows:

Only Mestinon - - - - 4

Only Prednison - -- - 3

Only Imuran - - - - - - 1

Few Med's and/or treatments - - - 29

---

4) For the question: "What medications have you dropped while on Cellcept ?" the answers were as follows:

None - - - - - - - - - - - - 12

Mestinon - - - - - - - - - 6

Tapering Mestinon - - -2

Mestinon TS - - - - - - - 2

Ephedrin –Sulfate - - - 1

Prednison - - - - - - - - - 3

Tapering Prednison - - 3

Imuran - - - - - - - -- - - 13

Cyclosporin - - - - - - - 3

Tapering – Cyclo. - - - 1

Cytoxan - - - - - - - - - - 1

Blood pressure med's - - 1

Plasmapheresis - - - - 1

IVIG - - - - - - - - - - - - - 2

---

5) For the question: "Are you taking Cellcept to avoid using Prednison ?" the answers were as follows:

Yes - - - 28

Others were not on Prednisone.

---

6) For the question: "Did the Cellcept helped you with DV ?" the answers were as follows:

Yes - - - - 4

No - - - - 15

---

7) For the question: "What side effects do you have due to the Cellcept ?" the answers were as follows:

None - - - - - - 12

GI - - - - - - - - - 9

Diarrhea - - - - 3

Acne - - - - - - - 1

Night sweat - - 1

Anemia - - - - - 2

Heart Palpitations - - 3

Sleepy - - - - - - 1

Weight Gain - - 1

Dizziness - - - - 1

Lost of Appetite / Weight loss - - 1

Constipation - - 1

Skin Rash - - - 1

Headaches - - -3

Nauseate - - - 1

Insomnia - - - - 1

Fatigue - - - - - 1

---

8) For the question: "Did you have a choice between taking Imuran or Cellcept, if yes why did you choose Cellcept ?" the answers were as follows:

Less Side-Effects - - - - - - 11

No results from Imuran - - 8

Was not given a choice - - - 6

Imuran is Not an option - - - 5

It’s a New drug of choice - - 3